CEO, Angelman Syndrome Foundation, Aurora, Illinois, USA

Founder & Scientific Director of Research, Brain Cancer Biotech Firm StemGen Inc.

Professor of Cell Biology, University of Milan Bicocca, Milan, Italy

Psychologist, Carolina Institute for Developmental Disabilities

Associate Professor, University of North Carolina at Chapel Hill, North Carolina, USA

CEO, 3billion, Seoul, South Korea

Director & Chairman, Institute of Human Genetics, Heidelberg University Hospital

Professor, Heidelberg University, Heidelberg, Germany

Consultant Medical Geneticist, Genetics & Inherited Disorders, Al Jawhara Center for Molecular Medicine

Assistant Professor of Molecular Medicine, Arabian Gulf University & University Medical Clinics

Chair, Rare Disease Campaign & CareforRare Support Group, Kingdom of Bahrain

Director, Clinical Integration, Angelman Syndrome Foundation, Aurora, Illinois

Geneticist & Pediatrician, University of North Carolina at Chapel Hill, North Carolina, USA

Chair & Co-Founder, World Duchenne Organization, Amsterdam, The Netherlands

Professor, Department of Molecular and Human Genetics, Baylor College of Medicine and Texas Children's Hospital, Houston, USA

Co-Director, Pediatric Mitochondrial Medicine Clinic, Texas Children's Hospital, Houston, USA

Director, BCM-CUHK Center of Medical Genetics, Prince of Wales Hospital, Hong Kong

Chairwoman Board of Trustees, Yasmin Elsamra Foundation for Epidermolysis Bullosa, Debra-Egypt, Cairo, Egypt

Member of Executive Committee of Debra International, Vienna, Austria

Director, Division of Medical Genetics & Genomics, Stead Family Department of Pediatrics, University of Iowa Healthcare

Richard O. Jacobson Foundation Chair, Pediatrics, Carver College of Medicine, University of Iowa, Iowa, USA

Program Leader, Accredited Duchenne Centers Program, Retired Rehabilitation Specialist, Radboud University Medical Center, Nijmegen, The Netherlands

Chairman of Epidemic Diseases Research, Institute for Research & Medical Consultations, Imam Abdulrahman Bin Faisal University, Dammam, Saudi Arabia

Chief Scientific Medical Director, Centogene, Rostock, Germany

Chief, Division of Medical Genetics, Nemours Children’s Hospital, Delaware, USA

Professor, S. Kimmel Medical College, T. Jefferson University, Philadelphia, USA

Chief Medical Officer, FDNA, Sunrise, USA

Consultant Dermatopathology, King Faisal Hospital, Makkah Health Cluster, Ministry of Health, Makkah, Saudi Arabia

​Senior Consultant Clinical & Biochemical Genetics, ​Genetic & Developmental Medicine Clinic, Sultan Qaboos University Hospital, Muscat, Oman

Consultant Medical Genetics, Institute of Medical Genetics, University of Zurich, Switzerland

Professor, Clinical Genetics Department, Human Genetics & Genome Research Institute, National Research Centre.

Professor, Genetics Department, Armed Forces College of Medicine, Cairo, Egypt

Unit Head & Consultant Clinical Genetics, National Genetics Center, Royal Hospital

Associate Program Director Pediatrics Residency, Oman Medical Specialty Board

Co-founder of Oman Rare Disease Support Group, Muscat, Sultanate of Oman

CEO, Prilenia Therapeutics, Naarden, The Netherlands

Professor, University of British Columbia, Vancouver, Canada

Chief Scientist, SimulConsult, Massachusetts, USA

Community Manager, World Duchenne Organization

Project Manager, Gemelli University Hospital, Rome, Italy

CEO & Founder, P4ML, Cork, Ireland

Genetic Counselor, Hamad Medical Corporation, Doha, Qatar

Clinical Geneticist, Division of Clinical and Metabolic Genetics, The Hospital for Sick Children

Professor, Department of Pediatrics and Molecular Genetics, Institute of Medical Science, University of Toronto

Senior Associate Scientist, Genetics and Genome Biology Program, the Hospital for Sick Children, Toronto, Canada

Dentist & Researcher, Dental Research Center, School of Dentistry, Pontificia Javeriana University

Associate Professor, Molecular Biology & Genetics, School of Dentistry, Pontificia Javeriana University & UNICIEO university, Bogota, Colombia

Medical Genetics, Sir Ganga Ram Hospital, New Delhi, India

Chief Information & Privacy Officer, LunaDNA, San Diego, USA

Professor, Department of Medical Genetics, National Institute of Health & Faculty of Medicine and Pharmacy, Mohammed V University, Rabat, Morocco

Communications & Events Manager, World Duchenne Organization, Amsterdam, The Netherlands

President of the International Huntington Association, Søgne, Norway

Founder and owner of Anzyz Technologies AS, Grimstad, Norway

Division Chief, Genetic & Genomic Medicine, Sidra Medicine

Senior Consultant, Medical Genetic Department, Hamad Medical Corporation

Associate Professor, Weill Cornell Medical College, Doha, Qatar

Consultant in Pediatric Bone Disease, Royal Manchester Children's Hospital

Professor in Child Health, Manchester University NHS Foundation Trust, Manchester, UK

Writer, Author, and Founder & Chairman of the Yes2MyGiving Team, UAE

Master in Education-Information and Communication Technology, The British University in Dubai, Dubai, UAE

Clinical Team Supervisor & Senior Pediatric Physical Therapist, High Hopes Pediatric Therapy Center, Dubai, UAE

Founding Partner & Clinical Director, Neuropedia Children’s Neuroscience Center

Consultant Pediatric Neurology & Neurophysiology, Neuropedia Children’s Neuroscience Center

Associate Professor of Pediatric Neurology, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Training & Research Manager of Applied & Behavioral Training Institute, Abu Dhabi, UAE

Consultant Pediatric Hematology & Oncology, Mediclinic City Hospital, Dubai, UAE

Consultant Pediatric Cardiology, KidsHeart Medical Center, Abu Dhabi, UAE

Head of Health Programs, Special Olympics UAE, Abu Dhabi, UAE

CEO & Founder, Neuropedia Children’s Neuroscience Center

Director & Consultant Pediatric Neurologist, Burjeel Hospital

Associate Professor of Pediatric Neurology, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Senior Clinical Social Worker

Founder of Together to Draw a Smile, Dubai, UAE

Chairman, MENA Organization for Rare Diseases Annual Meeting 2023

Founder & President, MENA Organization for Rare Diseases

Professor, College of Medicine, University of Sharjah

Consultant Clinical Genetics at Mediclinic City Hospital, University Hospital Sharjah, Kanad Hospital, KidsHeart, Neuropedia, and Genesis, UAE

Chair of Pathology and Laboratory Medicine, Cleveland Clinic Abu Dhabi, Abu Dhabi, UAE

Professor in Molecular & Genetic Medicine

Leader of the Genetics & Development Research Priority Group, College of Medicine & Health Sciences, Al Ain, UAE

Senior Speech & Language Therapist, Rashid Centre for People of Determination, Dubai, UAE

Rehabilitation Services Coordinator & Head Department of Communication, Language, and Speech, Al Noor Training Centre for Persons with Disabilities, Dubai, UAE

Genetic counselor, Igenomix, Dubai, UAE

Dean, Faculty of Education, The British University in Dubai, Dubai, UAE

Senior Speech-Language Therapist, Rashid Centre for People of Determination, Dubai, UAE

Life Support Instructor, Dubai Corporation for Ambulance Services, Dubai, UAE

Founder & Head, Clinical Genetic Unit, Al Qassimi Women and Children Hospital

Consultant Pediatric Clinical Genetics, Al Qassimi Women and Children Hospital, Sharjah, UAE

Department Head & Consultant, Neurology, Mediclinic Parkview Hospital

Associate Professor, College of Medicine, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Supporter for Determined

Head of family support, Read and Enjoy Center, Dubai, UAE

Physiotherapist, Rashid Centre for People of Determination, Dubai, UAE

Consultant Pediatric Neurorehabilitation & Head of Neurosciences Center of Excellence, Al Jalila Children's Hospital

Adjunct Clinical Professor, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Consultant Pediatric Cardiology, Danat Al Emarat hospital & Mediclinic facilities, Abu Dhabi, UAE

Physiotherapist, Rashid Centre for People of Determination, Dubai, UAE

Professor, Department of Paediatrics, College of Medicine and Health Sciences, United Arab Emirates University, Al Ain City, UAE

Allergy & Immunology Consultant, Tawam Hospital, Al Ain, UAE

Consultant Medical Oncology & Director of Oncology Services, Burjeel Medical City, Abu Dhabi, UAE

President of Emirates Oncology Society, Dubai, UAE

Professor, College of Medicine, University of Sharjah, Sharjah, UAE

Social Development & Care Expert, Community Development Authority, Dubai, UAE

Consultant Pediatric Neurology, American Center for Psychiatry & Neurology

Associate Professor, United Arab Emirates University, Al Ain, UAE

Consultant Child & Family Psychology, American Wellness Center, Dubai Healthcare City, Dubai, UAE

Special Educator & Master Degree in Biomedical Genetics, Dubai, UAE

Associate Professor of Genetics & Biomedical Sciences, College of Health Sciences, Abu Dhabi University, Abu Dhabi, UAE

Philosophy in Education (Special and Inclusive), British University in Dubai, UAE

Vice Chairman for Yes2MyGiving Initiative, UAE

Adjunct Faculty, General Studies, Higher Colleges of Technology, Ras Al Khaimah, UAE

Acting Executive Director, National Reference Laboratory (NRL)

Chair of Clinical Pathology, Cleveland Clinic Abu Dhabi (CCAD)

Adjunct Clinical Professor, Department of Pathology, College of Medicine & Health Sciences, Khalifa University, Abu Dhabi, UAE

President, Emirates Pediatric Nephrology Club

Consultant Pediatric Nephrology, Al Jalila Children’s Specialty Hospital & Mediclinic City Hospital

Council Member of Asian Pediatric Nephrology Association

Associate Professor, Dubai Medical College & Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Medical Director & Consultant Hematology, Laboratory Services & Mediclinic Precize, Mediclinic Middle East

Professor of Laboratory Medicine, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Director, MENA Organization for Rare Diseases, Dubai, UAE

Mum of Rare Disease Child

Medical Lab Technologist, Omics Center, Abu Dhabi, UAE

Co-Founder, Loulou Foundation (UK), Sharjah, UAE

Deputy Director, Thanks For Your Giving Volunteer Group, Sharjah, UAE

Employee, Dubai Government, Dubai, UAE

Genetic Counselor & Head of Education and Counseling Department, MENA Organization for Rare Diseases, Dubai, UAE

Medical Director & Head of Speech and Language Therapy, Rashid Centre for People of Determination, Dubai, UAE

Public Policy Analyst & Researcher, Advocate of Inclusion and Education for People of Determination, Dubai, UAE

Co-Chairperson, MENA Organization for Rare Diseases Annual Meeting 2023

Founder & Chairperson, UAE Genetic Diseases Association, Dubai, UAE

Founder & Chairperson, Sheikh Zayed Research Centre, Dubai, UAE

Head of Community Awareness Section, Dubai Corporation for Ambulance Services, Dubai, UAE

Department Head & Consultant, Pediatric Neurology, Al Jalila Children's Speciality Hospital, Dubai, UAE

Division Chief & Consultant, Pediatric Gastroenterology, Sheikh Khalifa Medical City

Clinical Professor, Khalifa University, Abu Dhabi, UAE

Consultant Pediatric Cardiology & Director, KidsHeart Medical Center, Abu Dhabi, Dubai, Al Ain, UAE

Assistant Professor of Clinical Pediatrics, Columbia University College of Physicians & Surgeons, New York, USA

Physiotherapist, National Diagnostic & Evaluation Center, Ministry of Community Development, Dubai, UAE

Consultant Pediatric Hematology & Oncology, NMC Royal Hospital, Abu Dhabi, UAE

Chair of Medicine & Consultant Hematologist, Head of Clinical Services, Abu Dhabi Bone Marrow Transplant Program, Abu Dhabi Stem Cell Center, Abu Dhabi, UAE

Disability & Rehabilitation Specialist, Disability Affairs Expert, Ministry of Community Development, Dubai, UAE

Clinical Dietitian, Neuropedia Children’s Neuroscience Center, Dubai, UAE

Director of Applied & Behavioral Training Institutes, Abu Dhabi, UAE

Division Head & Consultant, Pediatric Neurology, Sheikh Khalifa Medical City, Abu Dhabi, UAE

Scientist & Consultant Neurology, Abu Dhabi Stem Cells Center, Abu Dhabi, UAE

Professor of Neurology, University of Picardie, Amiens, France

Professor of Neurology, Khalifa University, Abu Dhabi, UAE

Consultant Pediatric Pulmonary, Mediclinic City Hospital

Assistant Professor, College of Medicine, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

Assistant Professor of Public Health and Epidemiology, College of Health Sciences, Abu Dhabi University, Abu Dhabi, UAE

Head of Psychology Department & Assistant Professor, College of Humanities and Sciences, Ajman University, Ajman, UAE

Division Director, Medical Research & Development, Center of Research and Innovation, Abu Dhabi Department of Health, Abu Dhabi, UAE

Program Director, SEDRA Foundation, Abu Dhabi, UAE

Clinical Operation Manager, First Genomix Laboratory, Dubai, UAE

Director, Opportunities, ImInclusive, UAE

Lecturer, Preventive and Restorative Dentistry, College of Dental Medicine, University of Sharjah, Sharjah, UAE

Founder & Clinical Director, Sharifa Yateem Center for Rehabilitation, Abu Dhabi, UAE

Senior Specialist Dental Public Health, Dubai Academic Health Corporation, Dubai, UAE

Expert Member of the National Oral Health Screening Committee and Leader in Oral Health Alliance Across Borders, USA

Senior Speech-Language Therapist, Rashid Centre for People of Determination, Dubai, UAE

Consultant Pediatric Neurology, Mediclinic City Hospital, Mediclinic Parkview Hospital, & Mediclinic Welcare Hospital

Adjunct Clinical Professor, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE

13 Years Old Child, Dubai, UAE

Special Education Consultant & Board Certified Behavior Analyst, Emirates Autism Society, Abu Dhabi, UAE

Consultant Pediatric Endocrinology, Mediclinic Parkview Hospital, Dubai, UAE

Consultant Pediatric Neurology, Medcare Women and Children Hospital & Aster DM Healthcare, Dubai, UAE

Department Chairman & Consultant, Pediatric Endocrinology, Tawam Hospital, Al Ain, UAE

Consultant Pediatric Infectious Diseases, Mediclinic City Hospital

Associate Professor of Pediatrics, Mohammed Bin Rashid University of Medicine and Health Sciences, Dubai, UAE